Ethical Preparedness in Genomic Medicine
Ethical Preparedness in Genomic Medicine (EPPiGen) is part of a Wellcome Trust funded collaborative award that combines conceptual and empirical research to explore the concept of ethical preparedness (EP) in areas of medicine that are rapidly evolving.
The work focusses on the gathering, and use, of big data in medicine with a specific example of genomics and its use in healthcare. EP is defined as the ability and willingness to work in morally appropriate ways particularly when off-the-shelf solutions or relevant regulations are ambivalent in a particular context. The research examines how the promise and challenge of genomic medicine is understood and experienced by those providing and engaging with the service.
